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Remaining Flexible in Parenting

Remaining Flexible in Parenting
Having the gift of raising a daughter with Down syndrome has given me a greater perspective in life. One of slowing down, taking deeper breaths, and acknowledging the hard work of our entire family. Each of us working together to support one another and having a deeper sense of compassion towards one another.

It's About Logistics

It's About Logistics
We can want a million things to come to pass in our lives but if we don’t build an environment conducive to cultivating the life we want, our dreams, the family legacy will never manifest they way we hope. In the days leading up to the New Year, ask yourself "what's my environment?" What needs to change so new things can grow? Share this statement with your family, "developing your story is a joint effort". Now, let's start putting small steps on paper.

Walking Into a New Year

Walking Into a New Year
In the coming days, as we prepare for the New Year, I will be remembering what our long term goals are. What’s been working and what hasn’t been moving the needle in the direction of our goals. If you're like me 2020 has been more about survival than anything. If I’m being real, some days, I’ve barely made it. 

Launch Day FAQs

Launch Day FAQs
A quick rundown of what's available in our shop, along with some tips for Launch Day. 

Down Syndrome Awareness Q&A: How Common is Down Syndrome

Down Syndrome Awareness Q&A: How Common is Down Syndrome
How common is Down syndrome? It is the most common occurring genetic condition. 200,000 cases occur in the US. I was 29 when I conceived Rory. Af...

Down Syndrome Awareness Q&A: Have your Friendships Changed?

Down Syndrome Awareness Q&A: Have your Friendships Changed?
 Have your friendships been affected?   Our whole life has been affected. If you would have asked me this question 2, 3 years ago you would have b...

Down Syndrome Awareness Q&A: Feelings of Quilt Over Your Childs Diagnosis

Down Syndrome Awareness Q&A: Feelings of Quilt Over Your Childs Diagnosis
Endless questions fill your mind when you hear your child has Down syndrome. There are three types of Down Syndrome. Translocation (at times hereditary), mosaic, and T21. T21 is the most occurring and, at this time, has no medical explanation. It is randomly occurring. 

Down Syndrome Awareness Q&A: Sharing a Special Needs Diagnosis with Siblings.

Down Syndrome Awareness Q&A: Sharing a Special Needs Diagnosis with Siblings.
How did you explain to Owen that she is different but should be treated the same? Did he instantly just get it?   When Rory was born, our oldest c...

The Importance of Staying Organized

The Importance of Staying Organized
Developing a routine is a huge challenge. Holding tight to one is even harder. On the blog I share why being prepared is the only course of action, if you want to feel steady at the head of your ship. 

Therapy or Fun? How to know when to "just" be Mom.

Therapy or Fun? How to know when to "just" be Mom.
Therapy days can be hard and overwhelming. You might be running around all day or hosting multiple people in your home during the week. Therapy can...

Meal and Feeding Tips for Children with Special Needs

Meal and Feeding Tips for Children with Special Needs
Eating is one of those things that we cannot force our child to do. We must exhibit a lot of patience and release control.

The Importance of Self Care for Parents of Special Needs Children

As parents of children with special needs, it's so important that we understand the need for self-care and all the different definitions of it.