Having the gift of raising a daughter with Down syndrome has given me a greater perspective in life. One of slowing down, taking deeper breaths, and acknowledging the hard work of our entire family. Each of us working together to support one another and having a deeper sense of compassion towards one another.
We can want a million things to come to pass in our lives but if we don’t build an environment conducive to cultivating the life we want, our dreams, the family legacy will never manifest they way we hope. In the days leading up to the New Year, ask yourself "what's my environment?" What needs to change so new things can grow? Share this statement with your family, "developing your story is a joint effort". Now, let's start putting small steps on paper.
In the coming days, as we prepare for the New Year, I will be remembering what our long term goals are. What’s been working and what hasn’t been moving the needle in the direction of our goals. If you're like me 2020 has been more about survival than anything. If I’m being real, some days, I’ve barely made it.
How common is Down syndrome? It is the most common occurring genetic condition. 200,000 cases occur in the US. I was 29 when I conceived Rory. Af...
Have your friendships been affected? Our whole life has been affected. If you would have asked me this question 2, 3 years ago you would have b...
Endless questions fill your mind when you hear your child has Down syndrome. There are three types of Down Syndrome. Translocation (at times hereditary), mosaic, and T21. T21 is the most occurring and, at this time, has no medical explanation. It is randomly occurring.
How did you explain to Owen that she is different but should be treated the same? Did he instantly just get it? When Rory was born, our oldest c...
Developing a routine is a huge challenge. Holding tight to one is even harder. On the blog I share why being prepared is the only course of action, if you want to feel steady at the head of your ship.
Therapy days can be hard and overwhelming. You might be running around all day or hosting multiple people in your home during the week. Therapy can...
As parents of children with special needs, it's so important that we understand the need for self-care and all the different definitions of it.
- Page 1 of 3